My beautiful daughter Daisy was born in March 2016. The first few days of her life were amazing, with her being a great sleeper and feeding really well. After that, on the 1st of April, she surprised us with her first bout of projectile vomit. Since then Daisy has been diagnosed with FPIES. FPIES is an allergy syndrome that causes Daisy to have projectile vomiting episodes when she is having a reaction to a food she is allergic to. Today I want to share a slightly light-hearted look at what it is like dealing with a poorly child – by talking about 5 places my child has vomited.
Dealing with allergies is never easy. Whether you have a single allergy, non-IGE or IGE, it is always difficult to adjust to the lifestyle changes required to keep safe. Often people without allergies won’t understand the difficulties faced when you, or your child, have an allergy. My own daughter Daisy has an allergy syndrome, called FPIES, which has changed the way we run our home and our life. At present Daisy cannot eat dairy, soy or chicken without a severe vomiting reaction, and has other problems including reflux and asthma. In addition to this, she has intolerances to strawberries and a few other foods. This means that we have to be super vigilant about what foods we feed her, where we eat and even what foods we keep out at home. Almost everything seems to be a potential allergen for Daisy and the simplest of tasks, like giving the cats treats, can become fraught with worry and anxiety about accidental allergen exposure.
Recently our lovely daughter Daisy had to spend some time in hospital. When we arrived in A&E initially we thought that she may be suffering because of her FPIES. It later turned out that she had a problem with her stomach X-Ray and we had to stay in hospital while she was rehydrated and to ensure that she got better. This was obviously a bit of an upsetting time but I want to share our experience in the hope that it may help someone else in the future if they find themselves in the same position.
When we first arrived at A&E we were told, within an hour, that Daisy was going to be staying in hospital. I was upset about this, as it meant that she definitely was poorly and something had flagged up in her bloods or on her X-ray. However, it later turned out she wasn’t seriously ill, which was such a relief!
Our daughter Daisy was born on the 21st of March 2016. It was the happiest, and scariest, day of my life, as I had to have a c-section and Daisy was born, weighing 5lb 13oz at full term (38+4). My entire pregnancy had been difficult and when she was finally born safe I was so relieved. We went home, and started our life as a family of three. Then on April Fools Day, at just 11 days old, Daisy projectile vomited for the first time. We had a chuckle. She was just playing a prank on us after all – right?! Wrong. Daisy had FPIES and the beginning of a long battle was starting for us.
Today I want to talk to you about something that we experienced for the first time back in April. Our beautiful daughter Daisy, who is now 16 months old, suffered her first febrile convulsion. I want to share our experience of Daisy suffering a febrile convulsion and talk about how we dealt with it.